Chronic Illness Links

(Image via thecreativekitty.wordpress.com)

Here’s some articles and interviews that I’ve read and heard recently and I wanted to share them with you. While some of the links deal specifically with vestibular disorders,  anyone living with a chronic illness can relate to the information that is being shared.

Marissa Christina is the guest on The Big Web Show. It is an audio interview where she talks to the hosts about living with a vestibular disorder and the hurdles she is facing while living on disability and trying to become a web designer. She also wrote about it on her blog called Abledis.com  where you will also find the link to the interview.

Many of you know  Lisa Copen as the founder of Rest Ministries  and National Invisible Chronic illness Awareness Week. Lisa has written an article called  5 Tools to Cope With Invisible Illness  to “help let go of some of the frustrations” of having an invisible chronic illness.

Those of us with chronic illnesses know that weather can affect not only how we feel but our health. These articles from CBS MoneyWatch.com and The Weather Network help explain how weather contributes to migraines, pain and loss of concentration.

Vestibular Disorders Association (VEDA) has an article called Observations on Cognitive and Psychological Aspects of Vestibular Disorder. It is excerpts from interviews with a social worker, an otolaryngologist and a neuropsychologist. While it deals with how vestibular disorders affect people psychologically, I believe that anyone with a chronic illness can see themselves in the article.

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2 comments

  1. I haven’t read all of the articles yet, but I read the one from VEDA. It was very informative! I forwarded to my husband. And would forward it to others in my family and friends, but don’t think they’d read it. (so what’s the use huh?)

    The section that talks about the lack of family support really struck a cord with me. (not just family, but friends too.) Simply lack of support. People don’t expect illnesses to last and last. they are very supportive in the early stages, but as it continues over the years…that support stops. And it is a huge disappointment and void for the patient.

    Thank you for this.
    wendy

    1. I found it very interesting, too. And I’m happy that there is something in writing that can be given to people. I hope it helps people become more sensitive and empathic to what is happening to us.

      Why not forward it with a bit of a description of what it’s about? One or two people may surprise you and at least skim through it and maybe pick up a thing or two about what’s going on with you. I’m not saying it will stay in their minds as these things tend not to unless you’re in a profession where you have to remember these things or you’re dealing with another illness and can relate. But, if it gives them even a momentary aha moment, why not.

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