HAWMC: My Best Doctor’s Visit EVER! It Really Is All In My Head.

(Image via freestockphotos.biz)

Today I am using one of the bonus prompts, which is “describe my best doctor’s visit”.

This won’t come as a surprise to those who are living with chronic illness, but the day I FINALLY received a diagnosis was, and still is, the best doctor’s visit ever. It took over five years before I had a diagnosis.

It was a beautiful fall day. Sunny, warm and the summer’s humidity was long gone. It was so comfortable to be outside. The ENT’s office is only about 5 blocks away and I took a cab to my appointment. Even though the office is close to me, I didn’t want to take a chance on missing the appointment. I can walk very short distances, but some days, walking two blocks is pushing things.

The doctor explained that my health issues involved my ears. So many things that couldn’t be explained by the other specialists started falling into place. So many things started making sense. I became my own chronic illness detective by connecting the dots and solving some of my health mysteries.

In the way that having a cold leads to not feeling well and then getting cranky, I could make sense of some of the various symptoms of my, until then, mystery illness. A lead to B lead to C. Ears giving me problems, adrenaline goes up, feel very warm even though I didn’t have a temperature. Sudden changes in weather, ear problems amplified, walking two blocks becomes a marathon.

When I walked home from the appointment that day (yes, I said walked home because I was that happy to have a diagnosis), I felt like I was floating on air. I was elated! I was euphoric! I smiled from ear-to-ear! I finally had an answer! And that’s what anyone with an unknown chronic illness wants – answers.

We all deal with various battles where our chronic illnesses are concerned and so many times we are being reactive instead of proactive. At least, that’s how I felt and still feel most days. Although the doctor couldn’t tell me the specific diagnosis and reason why my ears were giving me problems (he said it is common with vestibular problems to not know the cause), I had a diagnosis from a specialist that, yes, something is physically wrong with me. It wasn’t psychological – “in my head” – the overused diagnosis doctors give when they don’t know what is happening with you and you don’t present with symptoms that can easily lead to a diagnosis. This, wrongly, continues to happen to so many of us.

In the end, ironically, my best doctor’s visit ever confirmed that yes, not only is something physically wrong with me, (and since the ears are in the head) it really is all in my head.

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7 comments

  1. yeah…all mine are in my head too….well not all but if I had a new head i think I could deal with the rest. haha

    (thank you for the comment about Sandy. I know she’s finally resting now. But damn I miss her. Glad I already decided to take a break from things soon.)

    so glad you got a diagnosis…of some kind. It’s hell when you know something is wrong and they can’t figure out what it is.

    hugs.
    w

    1. Wouldn’t it be lovely if they could clone our bodies but leave out the medical problems? And, why not, let’s start out at a healthy weight but with all the knowledge we have right now. If you’re going to do it, then do it right.

      I’m glad you’ll be taking a break, but you know where I am if you want to chit-chat.

  2. Getting a diagnosis is a wonderful feeling. Learning it was “all in your head” made sense of your health issues. If you have a name to put on your health concerns, then connecting the dots becomes so much easier!

  3. It is a relief to finally find someone who listens and puts your medical condition together thus receive proper treatment. It’s also great that you had the ability to connect all the dots, even though it took 5 years. Everyone needs to be their own medical detective.

    1. It was hard for a long time. Doctors always asked dizzy or lightheaded. To the doctors, dizzy meant spinning rooms, which I didn’t have. No one explained the different ways you can be dizzy. After about a year, it was a few months between doctor’s visits because there wasn’t much new to say and no referrals to specialists. The odd thing here and there, but rarely anything to go running to the doctor and say “this happened”. Just had to be patient and observant.

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