From Ted.com (click on the link for the transcript):
The image below is an example of the “inspiration porn” that Young talks about.
Now, you know me, I love my quotes but there are times I look at some of them and think, no that’s too saccharine or too optimistic or too out there. On another day, looking at the same words but with different emotions, the quote works. It’s very subjective.
But, many of us have had experiences that have left us shaking our heads. Life does not stop because of a chronic illness or disability. Some of us are able to continue to work, go to school and participate in various activities. Some of us can’t or can only do it on a limited basis. And I truly appreciate when someone who doesn’t understand how I feel, has good thoughts or wishes for me.
But, I’ve had people look at me on days that I’ve felt like shit but have to go to an appointment and they say something like “Keep it up and you’ll only get better”. I half expect cheerleaders and a marching band to magically appear and accompany me as I drag myself to my appointment. I know they are trying to say something uplifting but they get hurt or mad as you try to explain that what they are saying doesn’t help mentally or emotionally. They just want to be seen as being positive and encouraging.
There is a fine line where someone may not understand what our lives are like, but is genuinely happy to see us able to do something and someone who wants to cheer and “rah rah” us for doing something we have to do, no matter how awful or in pain we may be.
But, if I feel I need to be cheered or “rah rahed”, I’ll let you know. Then cheer away. We all deserve and need that sometimes. Just let it be our choice.
Here are some quotes from the video. Do you agree with what she is saying or do you feel differently due to your experiences?
Yeah, we’ve been sold the lie that disability is a Bad Thing, capital B, capital T. It’s a bad thing, and to live with a disability makes you exceptional. It’s not a bad thing, and it doesn’t make you exceptional.
And these images, there are lots of them out there, they are what we call inspiration porn. (Laughter) And I use the term porn deliberately, because they objectify one group of people for the benefit of another group of people. So in this case, we’re objectifying disabled people for the benefit of nondisabled people. The purpose of these images is to inspire you, to motivate you, so that we can look at them and think, “Well, however bad my life is, it could be worse. I could be that person.”
So I have lived in this body a long time. I’m quite fond of it. It does the things that I need it to do, and I’ve learned to use it to the best of its capacity just as you have, and that’s the thing about those kids in those pictures as well. They’re not doing anything out of the ordinary. They are just using their bodies to the best of their capacity. So is it really fair to objectify them in the way that we do, to share those images?
People, when they say, “You’re an inspiration,” they mean it as a compliment. And I know why it happens. It’s because of the lie, it’s because we’ve been sold this lie that disability makes you exceptional. And it honestly doesn’t.
And I know what you’re thinking. You know, I’m up here bugging out inspiration, and you’re thinking, “Jeez, Stella, aren’t you inspired sometimes by some things?” And the thing is, I am. I learn from other disabled people all the time . . . We are learning from each others’ strength and endurance, not against our bodies and our diagnoses, but against a world that exceptionalizes and objectifies us.
1: an unforeseen combination of circumstances or the resulting state that calls for immediate action
2: an urgent need for assistance or relief <the mayor declared a state of emergency after the flood>
What will you do if there is an emergency? An earthquake, tornado or hurricane? What if there is a major power failure along the lines of the Northeast blackout of 2003? In this technological age, it seems like everyone uses computers to run things these days and we are so dependent on everything running smoothly. Yet it was a software bug that was the primary cause of the blackout.
Have you thought of or planned for an emergency?
And how do you plan differently if you are disabled or you are a caregiver for a person with a disability?
We can never be too prepared or too organized in case something happens. The Government of Canada has an Emergency Preparedness Guide for People with Disabilities/Special Needs page to help you create an emergency plan and kit.
This builds onYour Emergency Preparedness Guide (Step 1. Know the risks, Step 2. Make a plan, Step 3. Get an emergency kit) from the pull-down menu under Your Emergency Plan which also includes plans for children, pets and service animals and staying in touch during emergencies.
Below is the table of contents if you would like to read a particular section.
There is a wealth of information on the site to help you prepare. This is not a subject people like to think about, but we must.
Because you never know when an emergency will be just around the corner.
It’s Food Porn Friday time and I have found some healthier versions of popular recipes that have official (or maybe not that official) observances in June.
Because we deserve our treats and have them healthier, too!
The first Friday of June is National Doughnut Day. Wikipedia has the history of how National Doughnut Day carries on the tradition of Doughnut Day started by the Salvation Army in 1938 that honoured the men and women who served doughnuts to soldiers during World War I.
Epicurious.com has a recipe for Baked Cake Doughnuts so that you don’t have to fry them. To get the doughnut shape you will need a doughnut pan. If you don’t have one, muffin pans will give you doughnut-flavoured muffins. You could also use a cookie sheet but the doughnuts will have a flat bottom.
A great refreshment to go along with the doughnuts is iced tea, perhaps on June 10th which is Iced Tea Day. Many believe iced tea was invented at the World’s Fair in St. Louis but it was popularized at the fair due to the hot summer of 1904. Eatingwell.com has a variety of healthy iced tea recipes such as Orange-Earl Grey Iced Tea.
The National Peanut Board lists different peanut holidays throughout the year and June 12th is National Peanut Butter Cookie Day. Here are some peanut facts from the National Peanut Board:
And no food post about treats would be complete without chocolate. June 16th is Fudge Day. In keeping with the healthier recipes, I found this Sugar Free Chocolate Fudge recipe from Chocolate-covered Katie.
Enjoy these recipes and always remember to treat yourself.