As many of you know, I have an inner ear disorder that forced me to stop working and eventually have to go on disability because the specialists do not have the tools to help me.
I am, sadly, far from alone in living and dealing with a disability and doctors being unable to help me get better and go back to leading a productive life.
To say that funding and research for inner ear disorders are woefully lacking is an understatement. As those with vestibular disorders know, the public does not realize how many people of all ages are afflicted with inner ear disorders.
I also believe that it will take the involvement of A+++ famous people to help bring a much greater awareness and understanding about vestibular diseases. This, in turn, would bring about more funding and research. One has only to think about the effect of Jerry Lewis and the Muscular Dystrophy Telethon that so many of us watched. Or Michael J. Fox and Parkinson’s disease. Or Christopher Reeve and spinal cord injury.
While we don’t know why Lewis became involved with MDA, with Fox and Reeve it was personal. Fox has Parkinson’s and Reeve became paralyzed with a spinal cord injury as the result of being thrown from his horse at an equestrian event. The funding and research that has been made possible due to their involvement and activism is immeasurable.
There is a petition on Change.org right now (March 9, 2015) that is asking U2 to help bring awareness to Meniere’s disease. This is the request from the petition:
We are respectfully asking you Bono and your U2 band mates to consider helping us to raise awareness about this debilitating disorder with a simple statement before you sing your song “Vertigo” during your 2015 concert tour. A simple:
“We need to find a cure ‘now’ for the millions who suffer lives filled with vertigo and deafness caused by Meniere’s Disease.” would work wonders for us.
I hope you will take a few moments of your time to check out the petition, add your name and share this petition so that we can hopefully get A+++ famous people involved and help bring awareness to vestibular disorders.
I hope that one day we can talk about how people are being helped by the results of increased funding, research and discoveries. I also hope and look forward to the day that we can talk about how little people’s “quality of life” has been affected and how immeasurable the help of A+++ famous people has been.